/ 2022 / Portraiture / Self-Portrait
The Living Death
I have had a chronic illness called ME/CFS for 17 years. It has gradually become more and more severe. In 2010 I became housebound and in 2013 I became bedridden. I have been working on this project since 2010.
It started because I could no longer make the kinds of photographs I was inspired to make. But in 2010, I realized that my story of living with such a severe chronic illness for which there was no cure was the exact kind of story I would love to photograph if I was healthy, and that I could photograph myself. I tried to make honest depictions of my every day experience.