/ 2021 / /

Constant Fear of Death: Growing up with Albinism

This series is made up of portraits of four Tanzanian child survivors of violent superstition-driven attacks and in their own words their testimonials. The children are among the nearly 7,000 Tanzanians with albinism, a hereditary condition that results in a lack of pigmentation in skin, hair, and eyes. In Tanzania, witchdoctors promote a belief in the potential magic and superstitious properties of albino body parts, and children with albinism are murdered so their skin, hair, and appendages can be used to make charms and potions believed to bring wealth, power, and good luck.

Matilde Simas, a first-generation Azorean-American visual storyteller, dedicates her artistic endeavors to social narratives and personal stories. Matilde engages in collaborative projects that empower individuals to co-create their narratives and shape their representation. Her accolades and collaborations with NGOs around the globe underscore her commitment to using visual art as a powerful tool for social activism. Notably, her evocative images find a place in the U.S. Trafficking in Persons Report and Kenyan Directory of Service Providers for Trafficking Persons.