Epidermolysis Bullosa

• Photographer
  Ari Espay, United States

These are portraits of people with Epidermolysis Bullosa, or EB, is a group of rare disorders caused by a mutation in one of 18 genes. There are four major types: Simplex, Junctional, Dystrophic, and Kindler, and the specific type of EB is determined by the affected gene. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma.
There is no cure for EB, daily wound care, pain management, and protective bandaging help alleviate some of the debilitating symptoms.